"Uncle DanDan"

I think the title says it all!  Bella is on top of the world right now...Uncle DanDan is home and she (and I) couldn't be happier!  Danny has a little shadow...if she could she'd take him home with her!  She spent the night Thursday and she absolutely was worn out by bedtime.  She and Danny played all afternoon. They hunted zombies, fought evil..basically saved the entire World and every civilization known to mankind!  Loved it!

"I not tired Grammy!"

Painting at The Copper Kiln

Today we painted items at The Copper Kiln.  Bella was so happy he wanted to go with her.  She woke up from her nap and instantly started looking around for him.  We still have three more days with him before he heads home.  I have to agree with Bella when she told him (and has told me many times)..."I miss Uncle DanDan..I love Uncle DanDan..I wish Uncle DanDan would stay here forever."...so do I sweetie..so do I!

Nap time..she is getting so big!

We received her lung culture results...all clear...no growths!  YEA!!  However, she is severely PI (pancreas insufficient)...we were told she was PI when they started her on digestive enzymes, but we wanted a re-check.  So now we will start her on a different enzyme.  We are keeping our fingers crossed that she tolerates the new meds and that it doesn't cause her worse bowel issues.  CF SUCKS...I HATE IT!!!  I hate what it does to her..I hate that she to do treatments, take pills, etc....I HATE IT.  But I am so thankful that she has been so healthy (other then bowel issues) and thankful that she has family and friends that love her unconditionally and are so supportive...thankful that new treatments and technology have done so much in their efforts to find a cure...But I still hate it.